Pizza, positivity and perfect peace.

I haven’t written for a while. Why not? 

Life is busy and life is GOOD!

When I write this blog, I keep the personal details about my son out of it and focus on things from my perspective. He doesn’t even know about this blog and I know he would find it all a bit icky! It’s not that it’s a big secret but I really don’t think he’d be very interested. One day I might show him this blog and I would hate for him to be embarrassed or feel that I’d revealed too much about him. So, I keep personal details vague which can make it difficult to write.

With this in mind, what can I tell you about why we are going through this positive and peaceful period?

My boy has Type 1 diabetes but he has and is so many other things at the moment and my heart is bursting with pride! I love it when  his diabetes doesn’t follow me around like a cloud and is most definitely not the first thing I think of when I wake up in the morning! Long may this last! 

So how is my boy doing?

He is going quite well at school. A bit of a cheeky chappy at times but I kinda like that, as it will be a character strength that serves him well going into the future. He was encouraged to apply for leadership positions for his senior year and is currently doing that. I don’t even care if he gets a role but his teachers saw something in him that demonstrated leadership.  I am so grateful for that! He was blown away to hear this praise from a couple of amazing male teachers who are top role models for young boys. None of them really know the work my son puts in, the 121 decisions he has to make about his diabetes every day (I’ve never forgotten reading that statistic), and they certainly don’t see him as a victim. My son is very private about his diabetes so only some very special teachers have had a glimpse into this other part of his world.

He has a girlfriend and I’m trying not to explode with happiness. She is all I’d dreamt that his first serious girlfriend would be. They are clearly besotted with each other and they are having fun. They laugh, giggle and talk so much. She is wanting to learn about his diabetes and asks lots of questions. I’m trying not to have a total mum crush on her as, in the House of Testosterone, some female company is just lovely.

He has a part-time job which he likes. He has moved from one fast food place to another one just across the road. This one is so much better. His diabetes was spoken about at the interview and was totally not an issue. It’s actually a permanent part time job which means he has rights! He will even get sick pay and holiday leave. Can you believe it?

We have emerged from quite a tough year! The first few months of the year were very scary for me, as his mum. I could see he was struggling with this whole diabetes gig and just wanted it to be gone. We are so lucky to have an amazing CDE and paediatrician who helped us through this.

My own health was up and down recently. I’d been experiencing some stomach issues which are now on their way to being fixed. I hadn’t realised how awful I’d been feeling until I started to feel better. Currently I’m being quite selfish and can often be found binging on a Netflix series or curled up with a book. I’m focusing on my health and currently thinking about fermenting vegetables and making bone broth to help my stomach heal. Whilst this does not fill me with joy, to balance it up, I’m enjoying coming up with new toppings for the pizzas which go in our newly installed pizza oven. 

So there you have it! I’m quietly celebrating this calm after the storm.

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Hello, I give you my son’s heart and his non functioning pancreas. Please treat both with care!


Hello, you don’t know me but I know that you know my boy. You two spend hours on snapchat and messenger chatting about who knows what. I know there have been face to face meetings too. I think it’s time we had a chat! 

Here is a little questionnaire I’d love you to complete. Don’t look alarmed! It’s all cool!

Part A) Stand on one foot and answer the following questions whilst hopping:

– 24 + 57 + 63 + 82, then divide by 2, then divide by 15. Got that? Good girl! 

– 29 + 81 + 12 + 75, then divide by 3, then divide by 15. Still going? Well done! You may proceed to Part B.

Part B) How deep a sleeper are you? How many hours sleep do you average and do you wake up to alarms? Please write your answer in the space provided below.

Part C) Do you prefer routine or have more of a devil may care attitude to life? Think back over the last week please and write down the times at which you ate breakfast, lunch and dinner?

Part D) Imagine you had a cute boyfriend. For easiness sake let’s call him ‘son of mumoftype1’! A bit of a mouthful, I know but bear with me please! Imagine this boy suddenly collapsed. Which number would you call? 

Part E) If this boy felt brave enough to tell you that he had a medical condition called Type 1 diabetes, how would you respond? Circle your preferred response.

– nod your head and ask a few simple questions.

– say “that’s what my best friend’s uncle had and he died.”

– run

Part F) If you have made it this far, you are a keeper and I ask only one thing of you. Please don’t break his heart! 

Times they are a changing as the song says! I am really enjoying seeing my boys turn into men but I have suddenly become aware of how important a role potential girlfriends may have. Excuse my tongue in cheek look at this! 

Mission Accepted : The (Re)quest for a Replacement Blood Glucose Meter- Diabetes Blog Week – Day 3

The Blame Game – Wednesday 5/17

Having diabetes often makes a visit to the doctor a dreaded experience, as there is invariably bad news of one kind or another. And sometimes the way the doctor talks to you can leave you feeling like you’re at fault. Or maybe you have a fantastic healthcare team, but have experienced blame and judgement from someone else in your life – friend, loved one, complete stranger. Think about a particularly bad instance, how that person talked to you, the words they used and the conversation you had. Now, the game part. Let’s turn this around. If you could turn that person into a puppet, what would you have them say that would leave you feeling empowered and good about yourself? Let’s help teach people how to support us, rather than blame us! 

This is a blog post I wrote a while ago but I have relived this conversation again recently.


Background: 15 year old boy with Type 1 diabetes. Great kid with two settings: sloth and clumsy giraffe on speed. There is no way to predict which setting is in operation at any moment.

Motivation: Two Blood Glucose Meters which both, within a space of a week, show signs of not being reliable. This is not wonderful when your son has Type 1 diabetes. A call to the helpline will surely be able to fix this? 

Setting the scene: Your lunch break is 45 minutes. Mobile reception at your work is dodgy to say the least so calls have to be made from a phone in the middle of a busy staffroom. There is a tiny surface, about the area of a phone directory, where you can balance a notebook or iPad if you need info for your call.

Reality: 35 minutes spent in a queue. You do not have lunch as you didn’t think to bring your sandwich to the phone. You did not fit in a quick loo stop before you got on the phone and you are teaching for the full afternoon. A miracle occurs: you make it to the front of the queue and your call is answered.

Main characters

1) aforementioned high school teacher, starving hungry, in need of a wee and slightly on edge in case the Blood Glucose Meter her son took to school stops working.

2) extremely patronising lady who has clearly done a training module on how to talk with empathy to harassed customers.

Dialogue:(assume we have run through five minutes of privacy statement, details of child, various other details which we go through each and every time we call, serial numbers on the back of each meter in the tiniest font have been supplied, as you were smart enough in the middle of your son’s hypo that morning to remember to take a picture of the back of his 2nd meter and you even manage to simultaneously hold down two buttons on the meter on the tiniest ledge imaginable so as to be able to give the details of the error codes.)

Teacher: ‘Yay, finally a human! You are a human right? Great! My son has two of your meters and both appear to be playing up. On one meter, he repeatedly gets a message that the drop of blood is not big enough when it very clearly is whereas the other emits a strange squeaking noise when the cassette rotates.’

Lady – ‘Let me run through the method you and your son are using. No, please don’t stop me even if you think you know what you are doing, it’s amazing how often people are doing the wrong thing and your son has gone through a large number of meters which really does make me wonder.’

Slightly narky teacher– ‘We have been through this so many times that I could do your speech for you and I now only have 5 minutes left so can you please just put through the order for two new meters and I promise I will send back the old meters. Yes, my son is a teenage boy and so may not be the most precise and careful creature but he does care about his diabetes and having correct results. No, putting his meter in a little tub would not be an option as he carries it in his pocket when he goes from class to class. Yes, I will suggest that he treats his meters with great care and does not launch his school bag across rooms or sit on his bag if his meter is in it. Now about those new meters, are you going to send them?

Accusatory Lady: ‘Have you been following the correct procedure for inserting new cassettes and also do you follow our cleaning instructions from the back page of the manual ? Let me talk you through exactly what that is and you can follow on the meter you have with you. 

Defensive teacher: ‘For the love of God, can I have two new meters or not? I now have one minute left, I have nothing left to say to you. Are you understanding how stressful this is? I would love it if my son changed to another type of meter as I think there are better models than yours for him but he wants this type as he is comfortable with how it works. He has diabetes, not me, so I am respecting his wishes but, tell me now, are you going to send me two replacement meters as I need to go?’

Placatory Lady in a voice dripping with syrup : ‘I totally understand what you are saying and I will be sending you out two new meters with the understanding that you follow the correct procedure when changing the cassette and you promise me that you will frequently utilise the cleaning method using the cotton bud which we discussed earlier.’

Sarcastic teacher: ‘Thank you so much for your help, I look forward to receiving the meters and will ensure all protocols in relation to cassette changing and cleaning will be followed with the utmost care and attention. There’s the bell. I have to go!’

If there had been a concrete wall in front of me at that moment, I swear I would have found great comfort in repeatedly head butting it until I drew blood but instead, I picked up my bag and headed to my class, ignoring my rumbling stomach. I keep reliving that conversation and wondering if I should have done it differently.

OK, NOW FOR THE FUN PART! LET’S TURN THIS CONVERSATION ON ITS HEAD!

Set the scene: 2 unreliable BGL meters, one teacher, one service centre lady.

Phone rings three times and is answered by a lady with a calm, understanding voice who simultaneously manages not to sound patronising. 

Lady: Hi, how can I help you?

Teacher: Hello, my son’s two BGL meters are unreliable and I’m worried about his using them. Would you be able to sent me two replacements please?

Lovely Lady: Sure, please give me the code on the meters….. ok, that’s great, I’ve got all his info here. Is there any feedback that you would like to give me about why these meters might be unreliable? We are always striving to improve and it must be very stressful for you to feel like your son isn’t safe.

Grateful teacher: Look, it’s hard to say. He is a teenager and this is a delicate piece of equipment. I don’t want to blame anyone. I just need two replacements.

Wonderful Lady: Not a problem. I will get them both sent off to you tomorrow. I can see your son has had diabetes for a few years so I’m sure you both know what you are doing. Please let me know if there’s anything else I can do for you?

Ecstatic teacher: That’s perfect, unless you happen to have three teenage girls who may be looking for a life partner in a few years. You sound like a great woman!

Future mother in law of my sons: Sadly not! I too am the mother of three teenage boys. The struggle is real!

THAT WAS FUN! IT’S GREAT TO DREAM!

Celebrating being average!


I am average, my kids are average, most of my life is fairly average and I commit to celebrating this! We need to celebrate the average! Why is being average frowned upon and overlooked when that is what most of us are? This is my own personal protest cry for common humanity! 

I have three fantastic kids who are average and I am not ashamed of that. I hold my head up high and I love them with every ounce of my being. They go to school and do all their work, they play multiple sports, they have friends and people tell me they are lovely, polite boys. Why should I be made to feel that this is not enough? 

There is such pressure on our children to excel at everything or at the very least at something. Why are we not content to be what we are?  I see friends putting their primary school aged kids into tutoring to try and pull up their grades. These kids do their regular homework, then plough through the revision sheets issued by tutors. Their haunted little faces pain me as they are drilled to within an inch of their lives and have such high expectations put upon them to always do better. What skill set do they need to have for their future lives? Are they going to be astrophysicists or elite athletes? Why do we always seem to demand more and more of our children when they are already giving us their best effort but the results are ‘only’ average?

I certainly do not mean that kids should not excel. If your kid is in the gifted and talented category, good on them but for the love of God, please stop dropping that into the conversation! I get it you are proud and so you should be but I am equally as proud of my three children. I have tried to help each of my boys find something they can be passionate about. For them it is sport, in various shapes and sizes. 

I have decided to withdraw from this pressure! It feels so liberating but it is hard and I do need to keep myself in constant check. 

What caused me to rethink? 

Three years ago, my middle boy was diagnosed with Type 1 Diabetes. His life and our lives changed and numbers took on a far more significant role. Every day, my son checks his blood glucose levels multiple times, we calculate the number of carbs he is going to eat and from that the insulin dose he injects is calculated. He is growing and is very sporty so these calculations are constantly changed and modified in order to try to keep his levels in the sweet 4 to 8 mmol (72mg-144mg) range. Every three months an average is taken and we find out the results of the all important HbA1c. I’m sure many people (and/or their parents) with Type 1 Diabetes would acknowledge a certain nervousness when they are about to get this magic number. 

The night before this result is given, I feel sick and cannnot help but think back over the previous three months. We try so hard to keep those blood glucose levels in range, but real life gets in the way. Sport, illness and being human all interfere and I lie in bed picturing a big  zig zag with high highs and low lows. My son tries his hardest and so do we as his support team. It doesn’t matter what that number is, there is nothing we could have done differently.

When school reports arrive in the middle of a life full of numbers, it really makes me think. Don’t the same things, sport, illness and being human, impact on these school results? Yes they do and so I commit to stressing less about grades and results and as long as we are all trying as hard as we can most of the time then that is absolutely good enough!

Veni, Vidi, Lusi, Vici 


Veni, Vidi, Lusi , Vici- I came, I saw, I played, I won!

 If my son had a Latin motto it would be this! Julius Caesar take a back seat! 

There is none so fierce as a 16 year old boy determined to play cricket like a pro.  A flight was taken to another time zone.  Night time lows and day time highs were navigated with unintrusive help. Carbs were counted pretty successfully. The results of each game (read ‘battle’) were dissected on the side of the field.  Whilst cricketing tactics were openly discussed, my boy waged a silent campaign.  

He fought off heat, then cold. He made intricate decisions based on activity levels. The war, however, was not won by type 1 diabetes. My boy owned his diabetes and he dominated it!   He took a big step towards independence. The team performed well in a tough pool but the actual results of the games don’t really matter as the real victor is safely tucked up in his bed, back home with us, smiling to himself and reliving  moments of glory on the field.

Diabetes Queen  Mothers 

Diabetes Queen Mother

When your child is diagnosed with Type 1 diabetes, it is the loneliest feeling in the world! For me, it was the first time that I couldn’t wave my magic maternal wand and make something nasty and unwanted disappear. Other than health professionals (who can be amazing) there is generally no one to tell you what to do or help you help your child. Whilst it is your child who has diabetes and not you, you are their primary caregiver and as such are reponsible for them. This can feel all consuming.

A year after my son’s diagnosis, I discovered the diabetes online community. I read lots of blogs and found that I wanted to write my own. I am really clear when I write that it’s not me who has diabetes. I do not reveal my son’s name and I don’t post photos of him on my blog or on twitter. That is my choice, as I know my boy and he is private about his diabetes. 

It is hard as a parent to know what your online profile should be. Clearly, most of us do not actually have diabetes but it is such a big part of our lives whether our children are five or fifteen. I often feel hypocritical for even writing about diabetes as I don’t have it, but it can dominate my life and I do enjoy the connections I have made with people online, especially some other mums.

As 2017 comes to close,  I have seen the amazing phenomenon that is Constance Hall (read about it here). I follow what Constance does on Facebook. It’s so fantastic how she tells it like it is and connects with women across the globe with her total honesty and humour. I don’t need to agree with everything she does and says.  Her success comes from talking about how life really is. She hides nothing and people love this about her. Women being there for each other is not new but using social media to do this is a relatively new phenomenon.

With this in mind, I would like to pay homage and respect to the Diabetes Queen Mothers out there. There are many ways to be a Diabetes Queen Mother. None are wrong. I realise that some mums do things differently from me: some share much more than I would, others are more focused on research, and my own way of coping is to try to be realistically optimistic and focus on hope. 

We are all different yet we are all connected by Type 1 Diabetes and together we are stronger. It’s not our task to critique or question each other. We are not digital natives and we can be clumsy and awkward.  We don’t have solutions or cures but we have real, lived experiences of helping our children grow into strong, independent young adults. We need not always agree but we are Diabetes Queen Mothers.

Who are my Diabetes Queen Mothers? 

(In no particular order)

carbcountingkids.com

@carolynboardman (on Twitter)

@cstevens338 (On twitter)

Bigfootchildhavediabetes.com

Brightoneagle.wordpress.com

T1dandgf.wordpress.com

Acornishmum.com

Racheljgood.wordpress.com

@deepost30 (on twitter)

WaltzingTheDragon.ca

actuallymummy.co.uk

I’ve focused purely on Diabetes Queen Mothers in this blog. That is not to take away from the Diabetes Queens and Kings out there who inspire and teach us every day in many, many ways.


The Boy and the Egg Cross a Continent 


(I love this bust. I call it ‘Mother of Boys’. I saw it in a Château in the Loire Valley and immediately identified with her facial expression.)

Anyway, back to this blog!

Off he goes, cricket bat in one hand, Egg in the other! That’s my boy and, in my eyes, he is a champion before he has even left.

Being selected for the school’s First 11 cricket team was an honour, playing in the local school comp was fun and then came the cherry on the cake: the opportunity to join the team in a competition on the other side of Australia! 

First of all, what is it about bloody cricket and blood glucose levels? I sit on the side lines on a Saturday : a true martyr, looking just like the picture above. I’ve given up even trying to pick which child is mine, let alone try to understand the rules. Then comes the post match analysis of the game.  I smile, and adopt a Madonna-esque ( not pointy bra Madonna) facial expression and try to nod in the right places. Following this, we try to figure out the randomness of the BGLs (this time potty mouth Madonna can make an appearance) and we are stumped. (Hey, look, a cricket metaphor!).

Last week, wearing a CGM (funded by the local diabetes clinic) was a seemingly fantastic solution to working out what was going on. Great idea until there was an allergic reaction to the film keeping the CGM in place. Cue much frantic itching and the appearance of a nasty rash. A new CGM was put on after the weekend and was able to be kept on until the end of the week. The poor boy did have another allergic reaction but had kept quiet about it and soldiered on. The information gleaned from the wearing of the CGM has meant that the amount of insulin used around games can now be tailored much more precisely.

Challenge number one, was making sure the teacher leading the group had an awareness of Type 1 diabetes and was trained to use glucagon. This took some organising from our Diabetes Educator. She said her session with the teacher was fantastic and that the teacher was floored by what my son has to do every day. It is wonderful that he sees him as a ‘normal’ boy and he is, but there is so much work goes on, especially around sport, to make that happen. Now the teacher gets it, I can be confident in him being a good back up for my boy.

The next challenge was to find a family who would billet my boy. A lovely lady has put her hand up. Her sibling has Type 1 diabetes and her son is in the host school’s team . She has volunteered to do the 3am wake up so BGLs can be checked after a big day of cricket in the sun, presumably backed up with swims and back yard cricket. She is getting in all the hypo snacks needed and has sent texts checking we are all good to go. I am unbelievably grateful to this family. This had been my biggest worry as my boy sleeps through night time hypos. I am pretty tough and don’t cry often but I bawled my eyes out with sheer relief after I spoke to this lady.

After the school and accommodation were sorted, we needed to go through the action plan. We rocked up Friday afternoon to the local diabetes clinic. This date coincided with my son’s three year ‘diaversary’. On the way to the appointment, I really wanted my son to reflect on how amazing, fantastic and all round bloody wonderful he has been. As we drove, we chatted about all that had happened in those three years and I let him know in very clear terms how proud his dad and I are of him. 

My boy knows what he needs to do. He can carb count like a pro. He has a great knowledge of how to manage his diabetes. My hope is that, with all this knowledge and a good back up team, he can focus on having fun and playing some good cricket.

So here we are. Tomorrow is preparation day. Cricket gear needs to be pristine. Good clothes for going out folded. Full school winter uniform including blazer hung up ready to wear travelling. Then lastly we will go through the diabetes kit. A lesson on how to use the Frio packs, triple checking that there is enough gear to last a week and then we will wave him off in the wee small hours of Tuesday.