Diabetes Blog Week- Day 2 – Feeling Lucky

The Cost of a Chronic Illness – Tuesday 5/16  Insulin and other diabetes medications and supplies can be costly. Here in the US, insurance status and age (as in Medicare eligibility) can impact both the cost and coverage. So today, let’s discuss how cost impacts our diabetes care. Do you have advice to share? For those outside the US, is cost a concern? Are there other factors such as accessibility or education that cause barriers to your diabetes care?

I find it hard writing this post. We live in Australia and if I were to complain about the little things that annoy me I would sound pathetic. There are people in the world who do not have access to insulin. This is why charities like Spare a Rose are so important.

I know there is such an awful situation in the USA at the moment. I follow what is going on on Twitter and I feel sick for everyone there. The stress of not knowing if you will be able to afford insulin or the sacrifices that will need to be made must be very scary indeed.

I do not know the feeling of worrying about being able to afford insulin. My son has a healthcare card which gives him an even greater reduction on his insulin, meter strips etc for as long as he is a student. We have a supply drawer full of needles, meters, ketone strips, glucagon etc.

We have access to an amazing team locally who will see us as often as we need and are available via text and email when things go wrong. Our paediatrician is available and has a good knowledge of diabetes. We see a paediatric endocrinologist every six months. How lucky are we?

My son, if and when he wants to, can have a pump to use to manage his diabetes. We are lucky enough to be able to afford the private health care which would make this possible.

A recent bitter sweet victory was the funding of CGMs for under 21s. Why bitter sweet? It’s fantastic for under 21s but what are they expecting to happen when those kids who have become reliant on the CGM turn 21? A lottery win? What about adults managing their Type 1 diabetes? I can only imagine it must be very hard for them if they want a CGM and cannot afford the costs. We can only hope that this subsidy will be granted to all those with Type 1 diabetes.

We have access to great food and have jobs which mean we can eat well every day.

I know there may be others in Australia who may not feel so lucky. I can imagine our story would not match the experience of everyone here.

It is so sad that our experience is not that of all those who have diabetes. I only wish it were!

 

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10 thoughts on “Diabetes Blog Week- Day 2 – Feeling Lucky

  1. Thanks for lending a thought for the over 21s. I’m genuinely pleased your son can access these things! It’s fantastic that someone is getting the benefit FINALLY 🙂

    Liked by 1 person

    1. I can only imagine how annoying this must be for you! So many people worked hard to get this to happen and the wrong party won the election as far as CGMs are concerned! My son is still thinking about it. He is a low tech creature around his diabetes and as much as I think the CGM could be a game changer for him, I have to respect his decision.

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      1. We did, but it’s okay. My niece has t1 and she’s 5. I am over the moon that she can get this
        Sounds like you’ve written the book on being a Mum here. I wanted it badly and I hated it for a month. So you’re spot on letting him wait.

        Liked by 1 person

  2. I just read another blog about how those turning 21 lose the CGM funding. I have become so reliant on mine, I couldn’t imagine having it then losing it or not being able to afford it. It does sound like Australia is a great place for people with diabetes but I’m not sure I could go from having a CGM to not. Thanks for sharing!

    Liked by 1 person

  3. Living in Canada, our experience is similar. Many of our provinces offer pumps for young adults (no CGMs yet) and we are left to wonder, what happens to them when they reach that magic cutoff age? We count our blessings and continue to advocate for more I guess 🙂

    Liked by 1 person

  4. I don’t think you could ever sound pathetic! I am pleased your son has access to subsidised CGM if it’s something he wishes to do. And hey, diabetes will be cured by the time he’s 21, right?

    Liked by 2 people

  5. Agreed. You don’t sound pathetic at all. I’m seeing very clearly today that every system has its challenges. Each of us has the right to point out the problems we see in our systems… if we didn’t there’d be no chance that they’d change, right?

    Liked by 1 person

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